ASU student documents her own medical journey through photography

“It's been really interesting to be able to pursue a story with no reservations, because it's my own story"

Sophomore journalism student Anya Magnuson seemed perfectly healthy last November. Nearly five months later, she has almost 20 MRIs under her belt, close relationships with neurosurgeons at Mayo Clinic in Minnesota and a battle scar on the top of her head. 

But through the brain surgery and the therapy visits and the endless poking and prodding, she has turned her medical journey into art.

“I was 100 percent healthy up until this November,” Magnuson said. “I never took more than melatonin and the occasional ibuprofen.”

What began as daily headaches quickly progressed to debilitating head pain and vision blackouts by early December. Magnuson realized something was seriously wrong at a routine checkup when she tried to hand her insurance card to her doctor.

“My hand was in the wrong place, like it wasn't where my brain perceived it to be. I wasn't expressing words right, they were coming out jumbled,” she said. “I was like, 'am I having a stroke? Oh my god, I’m having a stroke.'”

She was admitted to Mayo Clinic in her home state of Minnesota for the first time over winter break. Magnuson underwent MRIs, lumbar punctures, tests for fungal infections and more.

Doctors gave her a shunt — a tube surgically put in her brain to drain cerebrospinal fluid — and performed a brain biopsy in early January. Roughly ten days later, she was discharged from the hospital. 

“I’d tell you what it is, but they actually don't know still,” she said. 

While it doesn't appear she had a stroke, doctors think she might have fungal meningitis, she said.

Magnuson started taking photographs to document her medical journey in mid-February when she was admitted to Mayo for the second time due to an infection in her shunt.

“December through January I considered doing photos, but I felt way too bad to be doing anything,” she said. “When you're in that much pain in your head, the only thing you can really do is hold really still.”

Post-biopsy and shunt surgery, Magnuson said she seemed to be recovering well and hadn’t experienced a headache in a couple weeks.

“I actually felt OK enough to be bored,” she said.

After being admitted to the hospital again for the infected shunt and finding herself still free of headaches, she started taking photos. 

Magnuson aims to capture her experience in all its glory and gore. She takes photos of her surgeons, her mom yawning in the hospital room, the injections she has to be given at home, the alarming number of pill bottles she has and the infected wound on the top of her head.

“I kind of like the fact that (the wound) is so gross and that people have to look at it, because I had to live with that for like a month and a half,” she said. “I feel like it makes people understand better what's going on.”

Magnuson was just admitted to Mayo for the third time last week. She hopes to be recovered by this summer so she can accept a photography internship and return to ASU in the fall. 

As a photojournalist, Magnuson said this project has pushed her to improve her craft. She used a lens she had little experience with and was forced to focus on the shot more than she has before, for which she said she’s grateful.

“It's been really interesting to be able to pursue a story with no reservations, because it's my own story,” she said. “Not having to worry about offending anyone or invading anyone's personal space because it's my story, and I can invade my personal space if I want to.”

Magnuson said she never would have started her photography project without some encouragement from fellow photojournalist and Cronkite almuna Courtney Pedroza.

Pedroza spent time in the hospital for valley fever — a disease Magnuson’s doctors haven’t ruled out — when she was at the same point in her college career as Magnuson is now. 

“I ended up having a cyst in my lung, a lung collapse and had to get about half of my lung removed,” Pedroza said. “During it I started to take pictures and really found it kind of therapeutic.”

She said she regrets not creating a more polished project from her photos and tried to encourage Magnuson to take advantage of such a rare and interesting opportunity to tell her own story.

“I didn't get my chance to, but when Anya started going through all these things I realized how much it helped me,” Pedroza said. “I thought it could be beneficial to her going through trauma like that.”

Jeff Magnuson, Anya’s father, said while it’s been devastating to watch Anya’s health deteriorate, he thinks the experience is “enriching in strange way.”

“It's what humans face. We face problems, we face things we don't understand, and then we try to make something out of that,” he said. “I see Anya trying to do exactly that with her project.”

Magnuson said he is proud to see his daughter take the gifts and skills she has and use them to create something positive.

“Trying to make something coherent out of it, to make some kind of sense out of what otherwise seems senseless,” he said. “To me that's what art is all about.”



Editor’s Note: Anya Magnuson formerly worked for The State Press as a photographer. 


Reach the reporter at mlutesad@asu.edu or follow @mackinleyjade on Twitter. 

Like The State Press on Facebook and follow @statepress on Twitter. 


Get the best of State Press delivered straight to your inbox.